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Had the most complete neuro exam I have ever had or seen done in my 30 years in ICU. We looked at the MRI on her computer and discussed the few lesions that were large enough to get a good look at. She agreed with me that the chances of those lesions being PML (worst case scenario) were very remote. One lesion looked like a small stroke (very small) in the area that would explain my neuro symptoms.
New plan is to get an MRI of the spinal cord to see if perhaps one or more of the active spinal tumors is interfering with some part of the cord or a major nerve coming off the cord. Will also get a repeat MRI of my brain to see if the lesions are getting larger or smaller. (that is scheduled 6 weeks after the first MRI) Larger means it probably isn't a stroke. Smaller means it may be bc lesions that the chemo is attacking.
I like this plan. Feel that no matter what it is she will be able to get to the bottom of it. She also get me a rolling walker to use any time and any where I am walking around, even at home. This is an effort to stop the falling down, which hurts, and could cause me to hit my head. I'm on anticoagulant medication so hitting my head is not a very good idea and we both want to prevent that.
Kay went with me. I was amazed at all she could say about what has been going on for me since the original diagnosis - she did't even know me then . Guess if you listen to the story enough times you too can repeat it. I love my gal!
Won't have the spinal cord MRI for a few weeks since they are way backed up on all the different scans. Brain MRI the week following the cord scan So for now I'm going to concentrate on the chemo and the exercises I've started to help the leg weakness and keeping the tendons and ligaments in my legs and back in good shape. Plan on stretching so much you will have to start calling me Gumby .
Of course I will keep you all posted on any progress and test results. You keep praying, especially for shrinking lesions and chemo working overtime!! Thank for all the support and encouragement. My breast friends are the greatest people in the world.
take GOoD care