Long story short: Monday I start radiation on T-12/L-1. Haven't met the rads doc yet so I don't know how many treatments he will want. Monday, the 12th, will probably be filled with a C-T scan so he can see the beast and then a discussion of the angle of attack, strength of each dosage of rads, and potential/possible damage to my GI tract. After that daily, Mon-Fri, rads treatment will start.
I meet the oncologist on the 20th to discuss his take in all of this and begin a new chemo, which will be Vinorelbine (plant alkaloid - made from periwinkle (I love that flower). All the usual side-effects to be expected, that strongest of which will be mouth, esophagus, stomach, bowel and goodbye hair. It will also attack platelets, WBC, and red cell. Just in time for the end of flu season. Lots of prayers needed to get around that.
The last part of this story is I am currently on opiods...lots of them. Have Fentanyl patch and take Oxycodone 6 or 7 times a day just so I can get around with my walker. With the back pain that isn't an easy trick. Even had to get a bedside commode because I could sit down far enough for the toilet . Could be worse. Could be diaper stage...arggggg.
So what I need now is lots and lots of prayer and some saneness. Poor Kay has watched me cycle through panic, fear, tears, screaming at God and at her, curling into a ball and feeling sorry for myself, the whole 9 years. Finally after a week I'm back to my old never give up attitude. Amazingly she is still taking to me, hugging me, and being her gentle self.
Prayers and encouragment from you would help. Being my normal self would help also but I don't have a clue how you could give me that. Just be you and know that some of the crazy might return - ignore it if it does.
Thanks so very much for being here.
Take GOoD care