I got my PET scan results. Haven’t seen the onc yet, appointment is the 10th.
Results: multiple new tumors, mostly in spine, pelvic area, 2 ribs on right, upper arm on left. Most interesting observation was I have a hole in my skull – in the upper back of head which has been sore to touch for about a month. Also have a pathological fracture in right hip where there was a tumor last time around. Also have 2 nodules in right lung and 1 in the left. Several older known tumors are hyperactive again!
Radiologist suggested a MRI with contract for my head. I think that is smart – will tell me if more tumor activity in the brain or not, and how far thru the skull does the hole go. Also suggested CT of chest to evaluate the nodules in lungs.
The scan kind of explains some of the things I’ve been experiencing. My punishment!! How many times have I said on here – “if something unusual is going on tell the onc”. Did I do that? NO! I have been very forgetful (more than usual) over the last 3 months. Can’t remember a person’s name and have known them for ages. Can’t find the word I’m trying to use which leads to frustration. Falling down A LOT (tripping over air). Standing still and right leg craters out on me – down I go on my face.
I am sure the onc will say I have to do chemo again and if he doesn’t say that I will!! I was hoping to get 10 years racked up before having to do chemo again and it’s only been 2 years. Right now I am very pissed off at God for not making me pay more attention to what was happening in my life, and myself for not following my own advice. Just when I seem to have found a perfect partner, a life that is a pleasure (mostly) and friends I love and I know they love me. Suddenly the rug is pulled out from under me.
For the last few days I have felt like I was losing this battle. Today is a little better. Have my big gal pants on and feel a little more centered. I have given up the trampoline until I see the doctor. Probably not smart to jump on the fracture.
Okay. That helped. Always good to spit out all those toxic thoughts. Now from you all I need prayers and positive thoughts sent into the universe. Also a good kick in the pants if I whine too much.
Take GoOd care
Zoe
p.s. The lymphedema in my legs is from impaired circulation and not a result of the bc. The lymphedema is from the poor circulation and the jumping on the trampoline is suppose to improve my circulation of blood and lymph. I found out last month that I have a semi troublesome cardiac condition. That stuff runs in my family so it didn’t surprise me.
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