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Anyone else HER2 positive and negative?
Posted by Christine P. on January 22, 2016, 2:58 am
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Diagnosed in March of 2015, stage 3 IDC, ER+, did 4AC, 12 Taxol, a lumpectomy followed by a bi lateral mastectomy / 4 lymph nodes removed a week later. 33 radiation treatments. My first HER2 test said positive. I switched oncologists and she did two more tests that both came back negative, so I was treated negative. After the mastectomy, my HER2 test came back positive so they said I should go start that treatment (big sigh). 5 percent of the BC population are both positive and negative. Today was number 5 of 6 Perjeta/Herceptin infusions. Last one is Feb 11 then I continue with Herceptin until October. I started Letrozole the beginning of the year. I'm hoping this Perjeta/Herceptin regimen was the right thing to do. I'm trying to remain positive - I've had the benefit of two treatments so hopefully that kills anything "lurking" as my oncologist put it. Thank you for any comments / advice.
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