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Posted by Marion on October 6, 2009, 5:18 pm
I want to thank everyone for their insightful response to my latest entry. The depth of understanding can only come from walking in some one elses shoes. But then again maybe in our case we all wear the same universal pair.
I think it was you, Jenni, that was suggesting I not be afraid to ask for what I need. Actually, I have been doing that since I was first diagnosed. I had researched and also talked with a friend at work who is also a survivor on what would be some specific needs during treatment. I conveyed these needs, and also pointed out that there would be also some unforeseen.
As things came up I asked for what I needed and the requests were blown off or met with excuses. My point being that I am not afraid to ask. What I do now is work my way down a list and this is what I say, "I need (this), if you can do this, thank you very much. If you can't that's ok, but please let me know so I can ask some one else". I have found that this type of asking for help simplifies things on many levels. It's not hard for me to ask, but a special blessings goes out to the ones who offer. A little intuitiveness goes a long way!
While it may not happen often, it's great when it does.
I see that many people have been survivors for years, but remain on this site as a support. That's awesome! What better support is there than.. been there/done that?
Chemo number 3 on Thursday. I have 8 all together. Two left of th Adriamycin(sp?) and Cytoxin. The last 4 will be Taxol.
The transfusion has afforded me a few days of almost feeling like myself, and I'm grateful for this time.
Who here is on the same treatment as I am?
Does anyone have a magic bullet for the unbelievable dry mouth treatment causes, besides drinking massive amounts of water?
Has anyone ever heard of lozenges that stimulate the salivary glands? I know they exist, I just don't know the product name.
Any one have mouthsores? Ask your oncologist for Magic Mouthwash. It calls for two teaspoons to be swished and spit out (or swallowed if need be). I personally found it to make my mouth alarmingly numb. Start with one teaspoon, wait a while to see if that is enough.
The loving and caring support is top notch here. I pray I will be able to do the same for others as well.
Marion~
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