Posted by Yugui Xu |
- Re: Patient from China for help
Posted by Frank on 3/4/2007, 3:29 pm, in reply to "Patient from China for help"
Hi, Yugui Xu! Welcome on this discussion board.
Here in Europe there are also many doctors who are not aware of this syndrome. Even the specialists (urologists) sometimes don’t know.
However, I would think that it is quite likely that SOME urologists in your country will have noticed this condition. People do have occasional urine retention for various causes and doctors will eventually apply catheters in such cases. But that is only a temporary remedy for the physical side of the problem.
I wonder whether it could help if you explain that you suffer from urine retention for psychological reasons, and that there is information and advice available on a few internet sites, like the U.K. Paruresis Trust site http://www.ukpt.org.uk itself, and the (mainly American) International Paruresis Association site http://www.paruresis.org . (Other links are given in the UKPT website: http://www.ukpt.org.uk/news_info/news_info_Links.htm ).In your case, I understand that you normally can pee OK when you are not bothered by the judgment or just the vicinity of other people. This is good and it seems to rule out a purely physical cause.
It also means that informing those other people may help, like it does in here and in the Americas. I hope that this can be done, or else you might show them the information on this and other websites. If you tackle the problem this way, you effectively become your own therapist. On the UKPT website there is a ‘protocol’, a structure for a dialogue wherein you can informally tell another person that you have paruresis, and how it affects you. (Look under: “First visit > How to tell someone” )And indeed you should try to prevent your bladder getting physically hurt.
Please read more on this forum and in the very extensive information on the UKPT website.
Frank
- Re: Patient from China for help
Posted by Frank
on 3/4/2007, 9:59 pm, in reply to "Re: Patient from China for help"Additional source for information: on one web page of the (U.K.) National Phobics Society you can find links of several interesting slide presentations on the psychological and behavioral aspects of Toilet Phobias.
http://www.phobics-society.org.uk/info_toiletphobia.shtml#links
(E-mail me in case you need information on getting free software (freeware) in case that is not yet installed on the computer you use.)
- Re: Patient from China for help
Posted by Yugui on 5/4/2007, 4:05 am, in reply to "Re: Patient from China for help"
Hi Frank and Andrew, Thank you very much for you information. In February, I had a surgery on my anus and I could not urine after that. I knew my condition and asked for catheters. It was bitter experience because three doctors inserted several times to succeed. This nightmare haunts since. Back to office I was bothered by female cleaner when I was in toilet cubic. That night I felt I would die because urine detention. I breathed hardly and my heart beat terribly. I felt hopeless in future. I even thought to suicide.
Next day I searched internet and found nothing because I could not find proper key words in Chinese. I thought I was the only men to suffer from this. I went to see urologist and psychiatrist for help and they knew little about this. My anxiety shocked my wife. It is hard to imagine those days. Finally I found Shy bladder syndrome and find www.paruresis.org. I emailed and got reply that they suggested www.ukpt.org.uk and I now know there are flock of people to suffer. So, your quick and nice response is my big hope to relay and even to recover. I am very grateful to you for helping me a lot!
Hi Frank, you mentioned freeware and email you. What kind of soft and where could I find your address?
- Re: Patient from China for help
Posted by Frank
on 5/4/2007, 11:06 am, in reply to "Re: Patient from China for help"Hi Yugui Xu, thank you for replying and giving more details.
It helps us to understand the severity of the problem.After my initial reply I wanted to also inform you of the additional information that is mentioned on (and linked to) on the web site of the (U.K.) National Phobics Society. That information is in the form of PowerPoint presentations, a kind of slide show on your PC. However, I then realised that there always is a possibility that the receiver of the message might be working on a PC on which the necessary PowerPoint software is not installed.
There is PowerPoint Viewer software that can be downloaded from MicroSoft free of charge.
But, to be fair, there is also a completely free alternative for the MS Office package; it is called OpenOffice. Inside OpenOffice the application OpenOffice Impress is used for reading, editing, and creating PowerPoint-like presentations.Since you had given your E-mail address in your first post (it is hidden, but can be found hyperlinked under the blue color of the underlined name of the poster who enters an e-mail address), I found it more appropriate to give you all the details via E-mail, if at all necessary. For that purpose, I entered my E-mail address hidden under my name in my second post. After all, this Discussion Board is about the software in our heads (admittedly, our most personal data processor), not about the software in our PCs.
So, you will find more details on PowerPoint viewing software in the e-mail that I have just sent you.
Best wishes,
Frank
- Re: Patient from China for help
Posted by Andrew on 5/4/2007, 8:07 pm, in reply to "Re: Patient from China for help"
Hi anyone If you are worrying about Frank's comment about email addresses: "it is hidden, but can be found hyperlinked under the blue color of the underlined name of the poster who enters an e-mail address"; that aplies only if you give your email address when you make a posting. If you do NOT give your email address when you make a posting, then it CANNOT be found. OK? We are careful to protect poster's identity if they so wish.
Andrew
- Re: Patient from China for help
Posted by Yugui Xu
on 6/4/2007, 2:53 am, in reply to "Re: Patient from China for help"Hi Frank and Andrew, Thank you all for helping me. Now, I feel better and a little bit relaxed after reading many articles on this board. I know it will take long time for me to recover. But I am confident of not getting worse. As 48 year old man, maybe it is late to know about AP. But it is not too late to do CBT. It is hardly to express my gratitude to you two! Any improvement I will inform you.
- Re: Patient from China for help
Posted by Andrew on 3/4/2007, 5:27 pm, in reply to "Patient from China for help"
Hi Yugui Xu I have received your email and have replied.
I look forward to hearing from you again.
Best wishes
Andrew