Posted by Frank on 3/4/2007, 3:29 pm, in reply to "Patient from China for help" Welcome on this discussion board. Here in Europe there are also many doctors who are not aware of this syndrome. Even the specialists (urologists) sometimes don’t know. In your case, I understand that you normally can pee OK when you are not bothered by the judgment or just the vicinity of other people. This is good and it seems to rule out a purely physical cause. And indeed you should try to prevent your bladder getting physically hurt. Please read more on this forum and in the very extensive information on the UKPT website. Frank
Hi, Yugui Xu!
However, I would think that it is quite likely that SOME urologists in your country will have noticed this condition. People do have occasional urine retention for various causes and doctors will eventually apply catheters in such cases. But that is only a temporary remedy for the physical side of the problem.
I wonder whether it could help if you explain that you suffer from urine retention for psychological reasons, and that there is information and advice available on a few internet sites, like the U.K. Paruresis Trust site http://www.ukpt.org.uk itself, and the (mainly American) International Paruresis Association site http://www.paruresis.org . (Other links are given in the UKPT website: http://www.ukpt.org.uk/news_info/news_info_Links.htm ).
It also means that informing those other people may help, like it does in here and in the Americas. I hope that this can be done, or else you might show them the information on this and other websites. If you tackle the problem this way, you effectively become your own therapist. On the UKPT website there is a ‘protocol’, a structure for a dialogue wherein you can informally tell another person that you have paruresis, and how it affects you. (Look under: “First visit > How to tell someone” )
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