Posted by George Mikesell
on 9/16/2004, 11:10 pm, in reply to "Re: Living Donor - No Antigens"
Hi I have been transplanted four mths, am on 4mg prograf,and 1000mg cellcept daily. It has been tough felt bad weak and finally depression. The last thing is that my knees calves, ankles, and feet hurt so that I can hardly walk. due to rejection meds, although this should get better in time as lower amount of meds. To answer some of your questions it is better to have as many antigen matches as possible, but with new drugs not necessarry. If I were you I would contact Dr. Nina Rubin at Massachuettes General hospital, or at Harvard mecical School. She and husband are researching Chimerism, Which means a blended immune system and no drugs,plus the donor does not have to be a match,other than blood type. Also Dr.Kenectle at University of Wisconsin School of Medicine, Madison. They use Compath pre. and post transplant and this allows the patient to get off of drugs in six mths to a year. Just remember the more drugs and the more dosage, the more chance of problems. I am experiencing low blood pressure and severe pain in knees, calves, ankles, and feet. Just about impossible to walk. other than that i am finally feeling real good. Not sick all time any more. Good luck and hope that I have helped. Ps. remember it takes six to nine mths to get through everything after transplant,don't forget depression,(it helps to talk to other people that have had transplants, they can tell you what is going to happen and how long it lasts)any way it worked for me. George
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