Posted by Brenda on 9/5/2004, 6:12 pm
I am new to dialysis....had a lung transplant 7 yrs ago and the Prograf shut my kidneys down in March of this year. I had almost no training about dialysis, really none, at the hospital where I recieved my first hemodialysis. I didn't recieve any at my dialysis center when I got there, either. Each must assume that the other had done it. Who knows. I ask a lot of questions and did lots of reasearch on the internet. Learned a lot from this site. But one thing I was never told....ALL MEDICINES ARE NOT DIALYSISED OUT BY THE MACHINES.... I ended up in the hsopital with a reaction from one of the meds I was taking after it built up to an intolerable level in my body. I was lucky, although it was very frightening for me and my family, it was a paranoid reaction, where I went temperorily "insane". I became violent and unable to control. I actually was held under guard for 3 days, my hands tied by leather straps and my body in a 'security vest". I was unaware of anything I was doing at the time. It has taken months for me to remember what some of the things I did were. Some I still don't and not sure I want to know. It was such a scary time for me. I do remember that !!!!, then in the hospital for 4 more days. I was lucky in that I didn't die from an "overdose" of this medicine. So, please beware and make sure the kidney doctor knows about anything and everything that you are taking. He now knows before I take any new medication. This med was prescribed for me after I was on dialysis, by a different doctor, she didn't know that it would not be dialysised out. ONLY a kidney doctor knows of the meds that won't be dialysised out, and even they say they don't know all of them yet. Be be aware of this, it can save your life.
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