Posted by Karen
on 4/30/2003, 12:07 pm
My husband had a kidney transplant on March 18th. It was a living donor (his younger brother) which, of course, is to have better results. He has experienced ATN (Acute Tubular Nacrosis(sp) or "sleepy kidney syndrome", infection, and now acute rejection. It has been a nightmare from the beginning. Six weeks later, he is no better off than before his surgery - still doing dialysis plus all of the anit-rejection medicines and it only cost us a mere $ 125,000.00 for these results. I am getting no answers from any of the physicians. All I hear is "we're baffled, we don't know", etc. We need support from someone and I am turning to forums to get that support. I know transplants are a risk and everyone's body is different but thought someone out there has been through the same situation or at least similar. To start, he and his brother matched blood (A) but no antigens but still said they could do the transplant. I had some raised eyebrows from nurses when I told them this. Also, my husband had an infection when they transplanted him. They did the blood cultures on Monday but did not wait for the results (24 hours) and went ahead and transplanted him. This is what I cannot get any answers on. He just came home last night after 2 1/2 weeks in the hospital for infection and rejection. They used thymoglobulin which did not work - at least not yet. I just want someone to talk to us and explain to us what is happening.
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