[ Post a Response | Hemochromatosis ]
Posted by Rick
on 9/13/2005, 10:26 am
68.148.233.96
Hi
I was diagnosed with hereditary HH about 5 years ago. The treatment for it has caused me continued problems. You know how some people get light headed etc. after giving blood? Multiply that by 10 and make it go up to 2 weeks and that's me. The bleedings have put me on disability twice in the last 5 years. Anybody else have an experience like that?
I've always asked any doctor, nurse or patient I meet about my reaction, but apparently I'm "unique". That sucks. Any ideas? I always drink a lot of water and eat before, but still end up messed up. They've even give me a saline IV before they bleed me and that only seems to delay the "fog" I go into.
Any help/thoughts appreciated.
R
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