[ Post a Response | Hemochromatosis ]
Posted by Bill F But you will have to provide a bit more information. For example your age, iron stores results (especially your ferritin and transferrin saturation numbers), general health, where you live, etc. But this much is certain, although there is no "cure" for HH, it is almost always treatable and controllable with regular phlebotomies, so don't panic. Your health care professionals should be your primary source of information. But not all of them are up-to-speed about HH. Tell us a bit more about your particular circumstanes and your extended family of nonprofessional experts will be better able to offer thoughts. Hold fast.
on 9/1/2005, 4:22 am, in reply to "just got diagonsed"
207.172.151.177
Martina: It is probably fair to say that many if not most people who are first diagnosed with hereditary hemochromatosis (HH) have never before heard of it. Learning that you have a "genetic disorder" is unnerving, especially at first. In addition to the wealth of information you can find on the CHS webpage and other sites, this message board is a wonderful place for more "personalized" exchanges with fellow HH patients.
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