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It's another one of those topics that doesn't get discussed, so it turns out it isn't as rare, nor are they as unusual, as it first feels.
You know how when you were diagnosed people showed up out of the woodwork to tell you their personal survival tale? Same here for these kids, apparently.
I don't think it's from a taboo place, I think it's from a place where we don't have language for this, so until there is 'like' feelings there is no way of expressing it. My friend who's son died of SIDS some 25 years ago still can't tell her story to people who don't know it, because there are no words. She can talk about him now, with those of us who know, but that even took more than 10 years.
My social worker friend who's been in CFS for 30+ years said when she started they didn't know how to ask the right questions about abuse to elicit the truth, and now they are 'better' at it. Same thing I think.
Hard topics are easier for society to bury than to find the words for. Hard on the sufferers tho.
Breast cancer is no longer shameful. Women in later years no longer die of 'stomach cancer' instead of uterine or ovarian or whatever the heck they really had 30 years ago. We have found the language for illness, to some extent.
I hope we can find the words for grief. Someday.