Posted by Kathryn on 6/9/2005, 7:05 pm We have gone through the usual gamut of GPs, Pediatricians, geneticists, orthopedic surgeons, physiotherapy, chiropractic, acupuncture...without any real resolution. We have finally entered the world of the Hospital for Sick Children in Toronto But not for EDS. We are working with their Chronic Pain Clinic in the department of Anaesthesia. We have reached the point where we don't care what the world wants to label her problem. We just want to try to get her some relief from her pain. This clinic has referred us to their resident expert in EDS because that's what they believe she has. She has seen another doctor at another hospital, recommended by this website, who thought that because she doesn't have an obvious skin involvement that she has BJHS not EDS. We have also been told elsewhere that the only type of EDS that shows up on a biopsy is the Vascular form. Has this changed? Comments, anyone? Thank you for "listening".
We have a now 12 year old daughter who has had over the past 3 years joint dislocations of her shoulders, fingers, wrists, hips, and pain in virtually every joint in her body. She has brutal calf pains which keep her awake at night, muscle pulls and has just been told that she has a pinched nerve in her back which sends electric shocks through her hip and down one leg. Sound familiar?
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