Hello everyone! I have considerable hip pain. My sister Liza has EDS. I am going to a general physician and he is listening to me but is unsure of EDS diagnosis. I have had hip xrays, eye exam and echocardiogram, all was normal. I also had the disc between c5 and c6 disinergrate for no known reason and spinal fusion done for that. I do notice that each time I lose weight (25 more pounds to go) I get more hip pain. I am close to "losing it" due to the pain. nothing seems to help. How can I help my doctor figure out what is going on and help him to help me. My sisiter is not doing to good and I hope to find things out before I reach her stage (god bless her for all her help and guidance but we are two states away from each other). Ant suggestions or anyone in the Portland Oregon area that has a good doctor or has EDS that may be able to help? Thank you and God bless! Leslie
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