Posted by Netdale3 I am looking for info on a med that has messed up some of my teeth. But I have been reading all the letters just to see if any one has anything to do with Actiq, the med I was on. GOD BLESS, Mark from CA --Previous Message--
on 10/4/2004, 3:51 am, in reply to "Re: 3 year old."
Hello there GREAT MOM:
But back to why I was writting you. It sounds like your son will be FINE with a MOM like you in his life. I just could not go on to the next letter without telling you how loving you sound about you son !!!! Good luck with that kid, & don't laugh @ him just with him. And that boy will be fine with what ever comes his way.
: I also have a son with classical type
: EDS. We knew he had EDS since the
: day he was born. He was born at 27
: weeks gestation. Thank god for his
: Neonatologist who was suspicous of
: him having this condtion as soon as
: he laid eyes on him. My son is 14mo
: old (12mo corrected). When he left
: the hospital, the staff hooked me up
: with all the local resources. He now
: has a p/t, Infant specialist,
: "super great" orthepedic,
: geneticist, pediatric, and
: cardioligist. Now that he is at age
: where he wants to walk is where i'm
: noticing his limber ways. I guess
: not like most parents who realise
: this condition on their children
: later than I, It was easy form me to
: accept because to me I was prepared.
: i love my child and I expect him to
: do some pretty funny things. I know
: my son will need help walking and
: keeping himself from being clumsy.
: It already shows, he doesnt give up.
: He doesn't cry anymore, it makes him
: laugh and so he tries again... This
: the begining of my journey. I, too
: am suspicious of having a mild form
: of EDS. I will test myself later,
: Right now I'm too busy sharing my
: laughs and exploring new wonders with
: my son ....
: --Previous Message--
: My 3 year old daughter has EDS
: classical type, most likely. I have
: classical type, but hypermobile runs
: in my husbands type, even though he
: is asymptomatic. ANyhow, she WAS
: diagnosed with EDS when she was 14
: months. now, her ankles keep giving
: out. She will be walking down the
: hall, or even just standing there,
: and the next thing i know, she has
: fallen over. I don't want her to
: have to wear orthotics, but this is
: happening more and more frequently,
: and I am concerned, don't know what
: else to do for her. they aren't
: dislocating, and once I pick her up
: and comfort her, she is perfectly ok.
: how do i keep her from falling over?
: :
:
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