Posted by Lori
on 7/14/2007, 11:32 am, in reply to "Clubfoot in Ehlers-Danlos Syndrome"
Hi, I have EDSIV and have clubfeet. The funny thing is every doctor you see will tell you something different. I have had two operations to fix the aneurysms in Vancouver, although I am from Sask. My mother is the one who had EDS but my father is the one who had the clubfeet. So now I get into the dominant and recessive gene thing. I believe that both my parents had EDS of some sort. 4/4 siblings have EDS IV, although the geneticist says 1/4 would have it. Do you have aneurysms as well or are they watching you to see for later?
--Previous Message--
: Hello,
:
: I am really in some desperate need
: of some feedback from others who
: have EDS as well as clubfoot or have
: any knowledge on this.
:
: Until recently it was suspected that
: I may have EDS Classical type
: however a skin biopsy has not yet
: been done. Last night I did a search
: on clubfoot and EDS which resulted
: in Vascular type consistantly being
: mentioned. I realize the severity of
: this type of EDS. I have some
: manifestations of this type of EDS
: as well as Classical type. But the
: clubfoot keeps me thinking it may be
: Vascular type. I am 27 years old and
: have been fortunate enough not to
: have a knee dislocation in the last
: 15 years and my last shoulder
: dislocation was about 10 years ago.
: Is there anyone out there who was
: Vascular type and can tell me when
: some major complications in Vascular
: type started for them? or anyone
: with clubfoot & EDS who can
: share their story.......
:
: Thank you!
:
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