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EDS Vancouver Docs

Posted by Caroline on 7/13/2007, 4:26 pm

Hi, I have just been dx with connective tissue disease (un-named so far) at the Chiari Institute in New York. Also dx with cranial settling, Occult Tethered cord and POTS. Most of what I've been dx with is "contraversial" in Canada so I'm having a tough time getting any tx for my neurologic problems.
I was hoping for better luck getting the connective tissue disease diagnosis. Anyone know who I could see in Vancouver? And is it usually a geneticist or rheumatologist?
thanks in advance,
Caroline

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EDS Vancouver Docs - Caroline 7/13/2007, 4:26 pm
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--Previous Message-- : Hi, I have just been dx with : connective tissue disease (un-named : so far) at the Chiari Institute in : New York. Also dx with cranial : settling, Occult Tethered cord and : POTS. Most of what I've been dx : with is "contraversial" in : Canada so I'm having a tough time : getting any tx for my neurologic : problems. : : I was hoping for better luck getting : the connective tissue disease : diagnosis. Anyone know who I could : see in Vancouver? And is it usually : a geneticist or rheumatologist? : : thanks in advance, : : Caroline :

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