Posted by Russell Johnston on 1/21/2007, 6:43 pm, in reply to "EDS, and other related? problems." Asthma also is typical. I've been using more darkness to help control my symptoms, and haven't had as much asthma/like problems recently. See photoperiodeffect.com Russ --Previous Message-- Link: http://photoperiodeffect.com
Pectus Excavatum (caved in chest) is typical of collagen disorders as the bones overgrow because tissue doesn't resist the growth sufficiently.
: I haven't been diagnosed yet, but I
: wanted to share some of my symptoms
: with everyone. It seems my health is
: deteriorating at a disturbingly
: quick pace, and I'm only 21.
: I've always been very hypermobile,
: in all of my joints. I have frequent
: hip and shoulder dislocations
: (although strange and unnerving,
: they aren't painful), and my knees
: have recently been popping and
: disturb me greatly with pain. I have
: fairly bad scoliosis and I have
: chronic back pain. My right leg is
: also shorter than my left leg. I do
: not have bad scarring, but I have
: horrible, wide and long stretch
: marks nearly all over. My skin is
: soft, pale, and veiny (I also
: started to get spider veins at 15).
: I have the characteristic facial
: appearance of someone with EDS. My
: skin isn't stretchy though, but I
: have a hard time healing. I have
: temperature and food sensitivities,
: I also have very frequent bladder
: infections and painful urination (my
: father who is 40 and has
: hyperextension only in his hands has
: already had 3 kidney surgeries to
: remove stones) and I'm nearly always
: constipated. Occassionally I have
: severe abdominal pain (for one time
: as long as a few months, and I went
: to get an ultrasound because I
: thought I might have a tumor or
: something, no one ever found out
: what it was, and the pain eventually
: went away) and calf and foot cramps.
: I have poor enamel on my teeth, one
: of my teeth (as an adult and baby)
: grew in without enamel at all. I was
: born 8 weeks premature and was very
: slow to walk. I have problems
: exerting myself (was diagnosed with
: exertional asthma), and keeping
: muscle tone. My skin is in general
: saggy because of this (even in
: attempts to tone up). I have very
: severe periods (in any way you can
: imagine) which have been slightly
: more regulated with the use of birth
: control. The only other thing I
: experience is numbness, tingling,
: and coldness in my extremities.
: Not sure if I have EDS, although I'm
: pretty sure that I do. I should be
: getting insurance fairly soon, and
: then I want to talk to my regular
: doctor about it and get tested. I
: was wondering if these symptoms are
: common in people with EDS, or if
: people with EDS can have symptoms
: from multiple types of EDS?
: Thanks in advance for any advice or
: answers you can give me.
: I have 3 half siblings as well. My
: little brother (11) seems to have no
: problems at all. My little sister
: (2) has a myriad of unexplained
: health problems (labored breathing,
: wheezing all the time, she makes a
: phelgmy sound when she breathes 100%
: of the time) and is nearly always
: sick, she also has a caved chest,
: not sure if that relates to EDS. My
: little brother was just born in
: December 2006, so I'm not sure if he
: displays any symptoms.
:
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