Posted by petra's mom Thanks for your time Tanya
on 11/14/2006, 11:06 am
HI everyone Yes its been a while since I last wrote. I hope to spend more time coming back to being able to write to you guys because I'am starting Feel lost in how to help Petra with evry day callenges. mostly the hidden pain in joints and back. she has felt that by the and of the day she is so tired that she just has to go to bed. She has said thatit feels that if her lungs are tired and it is hard for her to breath, by the end of the day. You can tell that it is taking its toll on her. Sometimes the advil doesn't touch the pain. One of the reasons That I need you guys is because I wan't to support my daughter and not hinder her in any way. Sometimes Just seeing her in her bed drifting off to sleep all I can do is wish that tomorrow is a better day. Does any one suffer from delayed gastric emptying. Petra has to take losec for this every day.
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