Posted by Sandy L --Previous Message--
on 9/10/2006, 2:15 pm, in reply to "fractures and EDS"
There is often overlap between connective tisue disorders. Your daughter may have some features of osteogenesis imperfecta, which in a pure form is associated with such easy fracturing that parents are sometimes falsely accused of abuse. Does your daughter have a blue ring in the whties of her eyes around the cornea? A blue-grey tinge is commmon in EDS, but a more intense color is said often to be present with osteogenesis imperfecta.
: I was wondering if anyone else has had
: this experience.
: My 12 year old daughter with EDS
: type I is having alot of breaks this
: year for some reason. It seems
: every few month something new is
: broken. She has the
: "normal" dislocations, but
: I was not prepared for the breaks.
: When I ask the orthopedic surgeons
: why this is happening, they just say
: that she is bigger and is falling
: harder. Seems like a strange reason
: to me. I would be interested in
: hearing other peoples stories.
: Seems strange that this is happening
: now. She fell alot when she was
: younger and never broke a thing.
: Lori
:
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