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Re: lost with little help
Posted by Sandy L on 5/28/2006, 2:12 pm, in reply to "lost with little help"
I gather that seeking referral to a genetics clinic is the best option. I have three patients I am trying to get in to see someone at a University genetics clinic here in Atlanta, but none have finished the process yet. Depending on where you are, there may be a good University/Medical School-associated clinic nearer than Toronto.|
: My son age 3, was recently named as
: having Type 1/ 2 EDS by a pediatric
: dermatologist...I got little info.
: from her and instead have been doing
: my own research but I have so many
: unanswered questions. He has not
: been "formally" tested.
: How do I make his happen? What is
: the process? We can not find a link
: in the family but perhaps it is so
: mild it has gone unoticed in the
: past? If you have any advice I would
: really appreciate it. Thanks so
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