My son age 3, was recently named as having Type 1/ 2 EDS by a pediatric dermatologist...I got little info. from her and instead have been doing my own research but I have so many unanswered questions. He has not been "formally" tested. How do I make his happen? What is the process? We can not find a link in the family but perhaps it is so mild it has gone unoticed in the past? If you have any advice I would really appreciate it. Thanks so much.
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