[ Post a Response | Cat Eye Syndrome Interest Board ]
Posted by Ali Di Maggio
on 10/25/2004, 6:59 am, in reply to "Missing my Hannah w/ CES"
66.119.33.156
Dear Jill,
I cannot help you with your question, but I would just like to say how sorry I am to hear of the loss of your Hannah. I cannot believe to imagine how you must be feeling. I have an 8 mth boy called Fabyan. We are told that he will have characteristics of CES, but his karyotype is strange. He is registered blind due to coloboma, has 2 small holes in his heart, undescended testes, and has just had surgery on his skull. I am frightened for the future for him, but I don't know what I would do if I lost him.
Hope you get your answers.
Love
Ali
Bristol
England
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