[ Post a Response | Cat Eye Syndrome Interest Board ]
Posted by Ali Di Maggio on 9/1/2004, 11:28 am, in reply to "My daughter with CES"
170.224.224.134
Dear Hope,
I have a 6 mth old baby boy called Fabyan. We were told that he will have symptoms relating to CES though his karyotype is not exactly right for this. He doesn't seem to fit into any specific category. He has been registered blind due to coloboma, he has 2 small holes in his heart, undescended testes and craniosynostosis.
To date he has been healthy in himself though he has his skull op on 8 Oct. He is still not lifting his head too well.
It is very frightening not knowing what we have in store with him.
It must have been so awful for you. I bet they hardly gave you any information when your girl was a baby. I hope she is well.
love
Ali
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