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Re: CES info, particularly in boys

Posted by Alison Di Maggio on 5/25/2004, 10:10 am, in reply to "CES info, particularly in boys"
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Hi, My 3 mth old baby Fabyan has been diagnosed with CES. It is so frightening not knowing what the future holds in terms of development. At the moment the things we know he has are; Coloboma of optic discs(registered blind) Ear pits Undescended testes Atrial septal defect Marcus Gunn jaw winking phenomenon Early closure of sagital suture As yet we are lucky that he has not been unwell. But it looks like he will have to have an op on his skull soon. He does sound very nasal so he is yet to see en&t specialist. god bless Alison

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Message Thread: CES info, particularly in boys - Marilyn 2/4/2004, 6:26 pm Re: CES info, particularly in boys - deborah 7/25/2005, 9:27 pm Re: CES info, particularly in boys - Roc 7/14/2006, 1:15 pm Re: CES info, particularly in boys - Mary 5/15/2006, 4:09 pm Re: CES info, particularly in boys - Alison Di Maggio 5/25/2004, 10:10 am « Back to thread

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