[ Post a Response | Cat Eye Syndrome Interest Board ]
Posted by Jenn on 11/28/2005, 12:34 pm, in reply to "CES"
152.131.9.197
I was recently blessed to a child with CES and I discovered that there is a support group called MUMS network, not sure of E-mail but they have been so helpfull with puttting us in touch with other families to see what we may expect. Some news is bad and some promising but they deal with people with rare disorders of all types.
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