Posted by TENA/ DIAMOND on 1/2/2009, 4:20 pm, in reply to "Re: Letter to NY Times #2"
I find it amazing that one person can act like the suffering of millions doesn't exist and that Pfizer is only saying It does to make money. Personally I don't care how much Pfizer makes on Lyrica, if it helps us. They are in the business to make money, they aren't philanthropic. I am 60 yrs old, and have had this syndrome since I was a child, so there goes several of his erroneous comments, I wasn't middle aged, and Pfizer didn't give it to me nor did the doctors who named it. A child cannot dream up this syndrome to suffer from. Actually, for a long time I thought everyone had pain like I did. Also, since it was given the name fibromyalgia 15 yrs ago, I had it long before it had a name. Of course aspirin won't help us, since its not an inflammation, what a brilliant man he is. When I was younger I used to say I wouldn't wish this disease on my worst enemy. Of recent years, I have a list of those who I would wish a months worth on, The doctors who tried
to make me feel badly by being ignorant, the DEA and their "war on drugs" that has more innocent casualties then Iraq, and now this man who thinks he knows what he's talking about. I feel that the Times should not have published this article without first considering the damage it was doing. I realize the point was that Pfizer stockholders are getting rich, but in doing this he publicly laughed at our suffering. We have enough problems with doctors and families taking us seriously without his misguided help. I have my issues with the newest Lyrica ad where she is reading her journal entry. I challenge Pfizer to find any journal written by a true fibromite that is worded so nicely, and without a few four letter words. Paulette DiPiazza Spotsylvania, VA ************ ********* ********* ********* ********* ********* ********* ****
I am a 62 year old lady who has suffered with fibromyalgia for approximately 22 years. I would like to tell Alex Berenson and his article, a few things that this disease does to ones life. I was in a serious accident almost lost my life, had several operations to put my face back on, had cancer and my husband left me with two children to raise. I worked several jobs to keep my children with food and clothing. After, several years of this I began to hurt throughout my whole body and nobody knew what was wrong with me. I've had two back surgeries ,one being a fusion and almost died from staff infection because our immune system can't fight off these type of things like normal people, who can stand pain, who don't complain do. As the years went by each year getting worse with more stabbing, burining,steady pain throughout my entire body. I kept trying to work until when I came home at night I would sit in the car and cry until my husband came and got me
out. I would go in the bed and stay there until morning and then do the same thing day in and out. Yes, we think we are crazy and have depression, anxiety, and all the things Mr. Berenson described. So after years of pain we get a doctor who cares and finally tells us we aren't crazy we have fibromyalgia and there are alot of people who suffer with this we find out.
I would like Mr. Alex Berenson to live in my body for 24 hours with no meds and tell me then if its all in my head. He would be begging for help for the pain. We live for years before we go on meds hoping that there will be someone who will help us. Now we have a name but no help. Yes, we try all drugs because when we wake up and our feet hit the floor, we scream inside , does he know how that feels in a everyday morning rountine we struggle through. I don't think so. I feel like unless you've lived in our bodies and hurt from the time you wake up and until you shut your eyes, that is if the pain will let you get sleep for 22 years you had better not complain about a headache or the flu because it doesn't even touch the edge of what we live through. Living under a cloud, yes, we do a black cloud that doesn't leave us alone for a minute of our lifes and gets worse ever waking hour. Thank God for the Dr's who understand us and try to help us with meds.
That is our only hope that someone will find a medicine that will give us a few minutes, a hour, or maybe a day that we can smile and say our pain level is better today. I am sure there are alot of us who would trade, if not all of us with Alex Berenson for a day or until he begs for his life back because he obsess's over pain and the symtons it brings to us. Well, here's one gal that's not 5'2" and overweight with fibermyalgia or whatever the medical association decides to name it, that would like to give mine to Mr. Alex Berenson my fibermyalgia. Sincerely, Mandy Darbe Chattanooga, Tn. ************ ********* ********* ********* ********* ********* ********* **** The article by Alex Berenson on Fibromyalgia is based on hearsay and opinion, not on scientific data. I am shocked that the New York Times would publish such poor journalism. This 'report' is not balanced. It is the responsibility of the Times to publish an article on the current research
findings by fibromyalgia experts. For example, fibromyalgia patients show elevated glutamate and substance P in spinal fluid. Also, heart-rate variability studies show that FMS patients have abnormal studies, indicating dysfunction of the autonomic nervous system. There is a wealth of research data, and Mr. Berenson did not present ANY of it
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