Trisomy 22 and Misc. 22 Interest Board: trisomy 22 CES

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trisomy 22 CES

Posted by Olivier on 11/12/2005, 11:37 am
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Hello, I am the mother of a six months old baby who has CES.We found out that she had a partial trisomy 22.She has ear malformations and severe coloboma.Both eyes are touched and we guess she can only see lights and therefore shadows.She will have further exams in hospital to see if her macula is touched.We have in France very poor informations and I would be very happy to get in touch with people having CES.Thanks Nathalie

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trisomy 22 CES - Olivier 11/12/2005, 11:37 am
- Re: trisomy 22 CES - Jenn 12/1/2005, 12:29 pm
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--Previous Message-- : Hello, I am the mother of a six months : old baby who has CES.We found out that : she had a partial trisomy 22.She has : ear malformations and severe : coloboma.Both eyes are touched and we : guess she can only see lights and : therefore shadows.She will have : further exams in hospital to see if : her macula is touched.We have in : France very poor informations and I : would be very happy to get in touch : with people having CES.Thanks Nathalie :

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