Trisomy 22 and Misc. 22 Interest Board: Re: Looking digeorge syndrome age group in their 20's

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Re: Looking digeorge syndrome age group in their 20's

Posted by Mary DeSimone on 10/23/2005, 12:01 pm, in reply to "Looking digeorge syndrome age group in their 20's"
206.15.138.107

Hi,
I'm sorry but I do not know anyone your age, in fact I just heard of the syndrome 7 weeks ago when I gave birth to my son and he was born with a heart defect and then tested positive for DiGeorge. Needless to say we are confussed and very worried for his future since there isn't much out there on it. As far as I know they just discovered this about 15 years ago. I have a question for you if you don't mind.
What made you test for it now? Were you having health problems? Did you have learning disabilities?
Thanks so much for your time and good luck!
Mary
--Previous Message--
: Hello
: I'm amanda gaudry
: I'm 22 years old and I was just
: diganosed this year with digeorge
: syndrome. I'm looking for people my
: age range who have lived with digeorge
: as long as I have. I have brothers
: and sister and my father is the
: carrier of the deletion. So it would
: be helpful if parents I know there are
: parents many on the web with digeorge
: syndrome.
: I have been searching for weeks and
: have had not much luck in finding
: people my age range with digeorge
: syndrom I am wishing to start a
: support group.
: thanks for reading.
: chow
: casper_mandy@hotmail.com
:

Message Thread:

Looking digeorge syndrome age group in their 20's - Amanda 10/7/2005, 6:11 am
- Re: Looking digeorge syndrome age group in their 20's - Mary DeSimone 10/23/2005, 12:01 pm
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--Previous Message-- : Hi, : I'm sorry but I do not know anyone : your age, in fact I just heard of the : syndrome 7 weeks ago when I gave birth : to my son and he was born with a heart : defect and then tested positive for : DiGeorge. Needless to say we are : confussed and very worried for his : future since there isn't much out : there on it. As far as I know they : just discovered this about 15 years : ago. I have a question for you if you : don't mind. : : What made you test for it now? Were : you having health problems? Did you : have learning disabilities? : : Thanks so much for your time and good : luck! : : Mary : : --Previous Message-- : Hello : I'm amanda gaudry : I'm 22 years old and I was just : diganosed this year with digeorge : syndrome. I'm looking for people my : age range who have lived with digeorge : as long as I have. I have brothers : and sister and my father is the : carrier of the deletion. So it would : be helpful if parents I know there are : parents many on the web with digeorge : syndrome. : I have been searching for weeks and : have had not much luck in finding : people my age range with digeorge : syndrom I am wishing to start a : support group. : thanks for reading. : chow : casper_mandy@hotmail.com : : :

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