
Posted by Amanda on 10/7/2005, 6:11 am
69.208.65.230
Hello
I'm amanda gaudry
I'm 22 years old and I was just diganosed this year with digeorge syndrome. I'm looking for people my age range who have lived with digeorge as long as I have. I have brothers and sister and my father is the carrier of the deletion. So it would be helpful if parents I know there are parents many on the web with digeorge syndrome.
I have been searching for weeks and have had not much luck in finding people my age range with digeorge syndrom I am wishing to start a support group.
thanks for reading.
chow
casper_mandy@hotmail.com
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