[ Post a Response | Trisomy 22 and Misc. 22 Interest Board ]
Posted by lroi lafleur --Previous Message--
on 8/4/2005, 10:36 am, in reply to "Re: new baby with problems"
24.118.241.127
I have no idea if this information will help but years ago I worked with special needs kids who suffered from poor sucking reflex and poor muscle tone. These kids had a syndrom called Prader Willey. Could this be the syndrom name you are looking for? I am not 100 percet sure if the spelling I used is correct but check anything with similar sound. If by chance this would be your case please get back to me and I will put you in cotact with someone who would have a lot of information for you.
: : gail
: There is something called the trager
: approach for such disorders as Md and
: Ms. Low tone Hypotonia etc. as far as
: something called Trager Syndrome as
: far as I know there is nothing like
: this . It is just called the Trager
: approach, named after the Dr. that
: founded the Approach of therapy for
: the disorders.
: Mechille
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: --Previous Message--
: Does anyone know of a 22 deletion
: related to something like Trager
: syndrome??? I can't find anything
: about it. I am familiar with DeGeorge
: Syndrome and VCFS - baby is ok on long
: chromosome test, normal MRI of brain,
: normal blood, no heart defects...poor
: sucking and low tone are main
: problems. Thanks for any help!
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