[ Post a Response | Trisomy 22 and Misc. 22 Interest Board ]
Posted by suzy on 7/28/2005, 9:46 pm
207.200.116.139
My daughter has this..22q duplication. I understand it is very rare.. at least it is very rarely tested or reported. She has complex heart defects which can be surgically corrected. Thank God! She has 2 colobomas of the optic nerve... they are going to check her hearing and she may be have some variation of a learning disabilty. There are many other things she "may or may not" develop. I wonder why I worry so much about what hasn't happened yet.. but are there other people out there with any problems??
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