[ Post a Response | Trisomy 22 and Misc. 22 Interest Board ]
Posted by Cindy on 2/11/2005, 4:48 pm, in reply to "Re: Pregnant with complete Trisomy 22 baby need answers to ?'s ! ! !" --Previous Message--
208.187.141.154
Billie - You daughter must not have had full or complete Trisomy 22 right? My understanding was that if you had full trisomy 22 every cell would be affected therefore incompatable with life, which was my daughters case
: : Iam the mother of a 22 month old
: daughter who was born with trisomy 22.
: Although I did have a some what
: difficult pregnancy, mainly due to
: stress because of signs that there may
: be a problem with the baby. The
: doctors routine testing did not catch
: the trisomy 22 and I did not have
: amniocentesis. Elizabeth was born full
: term and did face some serious medical
: problems such as a malrotation of the
: bowel which needed immediate surgery.
: She also had a cleft palate which was
: repaired successfully at 18 months
: old. She has two heart defects a
: atrial septal defect and a bicuspid
: aortic valve. No surgery has been
: needed to correct these problems
: however she is followed closely by a
: cardiologist.
: Although we have had some rough times
: and she has been through a lot,
: Elizabeth is an extremely happy baby.
: Her personality is beautiful and
: anyone who is around her can't help
: but feel good. She has taught our
: family a lot and we can't imagine life
: without her. I am 22 and this is my
: first child. I wish you the best of
: luck and my prayers are with you.
: --Previous Message--
: This is my first pregnancy, and my
: unborn little girl has Complete
: Trisomy 22. The doctors said that she
: will only last a max of 2 weeks afters
: she's born. Is this true? Could they
: be wrong? They also said that babies
: with this disorder usually are the
: one's that die in the first trimester,
: but i'm already 23 weeks. She's very
: active inside. They said I should
: start planning on a burial place for
: her, and to think about who I want to
: be there when she's born, like a
: priest. I just don't know if it's all
: true, I guess I don't believe it. Has
: this happened to anyone else? Did the
: baby live.
:
:
:
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