[ Post a Response | Trisomy 22 and Misc. 22 Interest Board ]
Posted by Kim
on 7/22/2009, 10:44 am, in reply to "Re: Trisomy 22 Mosaic; any info"
71.207.14.57
Our daughter is 22 years old. She was diagnosed with Trisomy 22 Mosaic when she was six months old. At that time we were told that she was one of the first childen diagnosed. We were given very little info at the time and still have very little knowledge of her disorder now. There just isn't much out there. Our daughter just got her GED. We home schooled her. So she wasn't just passed through the system and given a diploma, she earned it on her own. She does have some physical disablities but nothing that stops her from living a so called normal life. From what we have gathered, trisomy 22 mosaic is similar to Downs Syndrome in that children that have both of them can cover a large range from mild to severe.
Our best advise is never say to your child "you can't to that". Always "try" as long as it is safe. And encourage and grow any interests your child has. Don't compare your child to others. Let your child lead you and enjoy the journey.
--Previous Message--
: Hi Barbara
: My daughter Claire has Trisomy 22
: mosaic. She just turned 3 and is
: doing well. If you want more info I
: am happy to share, just send me an
: email. Take care, Leanne
: --Previous Message--
: I'm 21 weeks pregnant and was told the
: baby has trisomy 22 mosaic. I can't
: find a whole lot of info on outcomes,
: life expectancy, etc. I was told 9 of
: 19 cells tested had trisomy 22. I'm
: guessing this is suggestive of being
: on the worse end of the spectrum??
: Any info anyone has would be of great
: help. Thanks. Barbara
:
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