Trisomy 22 and Misc. 22 Interest Board: Trisomy22 (Emanuel Syndrome) willing to share info

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Trisomy22 (Emanuel Syndrome) willing to share info

Posted by Diana Rodriguez on 1/26/2009, 11:51 pm
67.8.0.33

Hi,
My name is Diana Rodriguez (Lenis), recently married. I have had 2 children, both with Trisomy 22, Cardiac problems, respiratory problems. My son was 3 months when he passed away in 2000 from heart failure and my daughter passed away on 1.14.09. I would like to share my story with other and to help others cope with this diagnosis, coping with the care of a child medical needs and/or coping with the death of a child. We are in the Olando, FL area. Feel free to contact us for more info. Dlenis@comcast.net.
Diana Rodriguez

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Trisomy22 (Emanuel Syndrome) willing to share info - Diana Rodriguez 1/26/2009, 11:51 pm
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--Previous Message-- : Hi, : My name is Diana Rodriguez (Lenis), : recently married. I have had 2 : children, both with Trisomy 22, : Cardiac problems, respiratory : problems. My son was 3 months when he : passed away in 2000 from heart failure : and my daughter passed away on : 1.14.09. I would like to share my : story with other and to help others : cope with this diagnosis, coping with : the care of a child medical needs : and/or coping with the death of a : child. We are in the Olando, FL area. : Feel free to contact us for more info. : Dlenis@comcast.net. : Diana Rodriguez :

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