
Posted by Diana Rodriguez
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on 1/26/2009, 11:17 pm, in reply to "Re: trisomi 22"
67.8.0.33
hi ashley,
my name is diana rodriguez, i have had two children with trisomy 22 and they both had heart problems. use this website to help you it does have alot of useful information. www.c22c.org
--Previous Message--
:
: Hi Mariann
:
: I would like more information about
: trisomy 22 ... I have a family friend
: who was diagnosed with it recently. I
: would like to know how long they live,
: and what problems they usually
: have...this person had a severe heart
: defects as well as vaginal-anal
: fistula, and imperforate anus. It
: appears that the imperfoate anus is
: quite common finding, anything else
: you can share about general
: understanding of trisomy 22 mosiac
: presentation would be much
: appreciated. Thanks
:
:
: --Previous Message--
: Hello!
:
: my name is Jenny and I'm from Sweden.
: First I will apoligize for my bad
: english, I hope you'll understand me.
: I have a daughter. she is 2 year and 3
: months. This weak the doctors said
: that she has trisomi 22, but they
: could'nt tell me much about it. The
: only thing my daughter has is
: heartfailure and she is tiny.
: Can you tell me more about trisomi 22
: i will be more than happy.
:
: With love Jenny
:
: --Previous Message--
: I had a boy with trisomi 22.
: He wa born in 1993. He died in 1997.
: If anybody want information from me,
: pleace send me an e-mail.
:
:
:
:
:
:
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