[ Post a Response | Trisomy 22 and Misc. 22 Interest Board ]
Posted by diana Rodriguez
on 1/26/2009, 11:02 pm, in reply to "partial trisomy-looking for information"
67.8.0.33
--Previous Message--
: My baby is nine months with partial
: trisomy 22q13.3 and monosomy 21q.My
: baby barely eats (between 200 cc and
: 400 cc in 24 hours although we do put
: more calories in her bottles) and is
: not growing much. The doctors are
: pushing off the tube because she is a
: happy kid, she is not dehydrated and
: they are not sure she will grow more
: if she gets more food. I can't help
: wondering if she will develop more
: with a tube. If anyone has any
: information about this, I would
: appreciate it.
: Thanks,
: Rachel
:
Hi Rachel,
My name is Diana Rodriguez, i had a 7 month old baby, named Angelica, she passed away on 1-14-09, she had trisomy22 (emanuel syndrome). we started with a nasal gastric tube and then we were told that a G tube would be helpful and it was. It made things easier, the surgery is simple depending on which tube they place in. i recommend it if you child is having a hard feeding by a bottle but if she takes a bottle then just continue to feed her by bottle, you may have to continue to increase her calories. I hope this helps, feel free to keep in touch.
Diana Rodriguez
Message Thread:
« Back to thread
Visit our home page, http://www.nt.net/~a815/chr22.htm