Trisomy 22 and Misc. 22 Interest Board: partial trisomy-looking for information

[ Post a Response | Trisomy 22 and Misc. 22 Interest Board ]

partial trisomy-looking for information

Posted by Rachel on 1/14/2009, 9:38 am
79.176.109.19

My baby is nine months with partial trisomy 22q13.3 and monosomy 21q.My baby barely eats (between 200 cc and 400 cc in 24 hours although we do put more calories in her bottles) and is not growing much. The doctors are pushing off the tube because she is a happy kid, she is not dehydrated and they are not sure she will grow more if she gets more food. I can't help wondering if she will develop more with a tube. If anyone has any information about this, I would appreciate it.
Thanks,
Rachel

Message Thread:

partial trisomy-looking for information - Rachel 1/14/2009, 9:38 am
- Re: partial trisomy-looking for information - Kristine 2/28/2009, 8:23 pm
- Re: partial trisomy-looking for information - diana Rodriguez 1/26/2009, 11:02 pm
- Re: partial trisomy-looking for information - Crystal Napolitano 1/14/2009, 11:02 am
« Back to thread

Post a Response

Your Name:

Your Email:

Subject:

Message:

--Previous Message-- : My baby is nine months with partial : trisomy 22q13.3 and monosomy 21q.My : baby barely eats (between 200 cc and : 400 cc in 24 hours although we do put : more calories in her bottles) and is : not growing much. The doctors are : pushing off the tube because she is a : happy kid, she is not dehydrated and : they are not sure she will grow more : if she gets more food. I can't help : wondering if she will develop more : with a tube. If anyone has any : information about this, I would : appreciate it. : Thanks, : Rachel :

Notify me by email of all message replies.

Please enter the numbers above. This helps stop spam.

By posting, you confirm that you have read and agreed to be bound by the board's usage terms.

Visit our home page, http://www.nt.net/~a815/chr22.htm

Hosted for FREE by Boardhost.
Create your own free message board!