[ Post a Response | Trisomy 22 and Misc. 22 Interest Board ]
Posted by Cassandra
on 7/3/2008, 3:29 pm, in reply to "22q11.21 Duplication"
24.159.146.101
--Previous Message--
: My child is 11 years old, has had
: difficulties since birth, and was
: recently diagnosed with 22q11.21
: duplication. I would like to be in
: touch with other families with the
: duplications! She is high-functioning
: autistic, mood disorder, sleep
: difficulty, GI issues, etc. and a
: great kid!! I look forward to hearing
: from you, and Thanks!!
:
I have a wanderful 5 year old little boy who is my pride and joy. He has the same duplication with different symptoms. He has craniosynostosis, sensory integration, GI difficulties, and low immunity...much more. I live in the United States, and I am also trying tyo find out more about The New Emerging Syndrome. I would love to speak to someone who can relate.
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