[ Post a Response | Trisomy 22 and Misc. 22 Interest Board ]
Posted by joy
on 4/20/2008, 10:53 pm, in reply to "5 month old Daughter with partial 22 trisomy, looking for others with same situation"
199.222.167.143
Hi, my name is joy my daughter is 1 now. she too. is pretty good. she has a cleft palate, 1 ear, a small jaw. she had a gtube and malrotation surgery. she has hip dysplacia. she is so great she is a little behind but she is a joy if you want to chat just email me. i would like to hear more about your baby. thanks joy
--Previous Message-ar
: Hi there,
:
: My 5 month old daughter was recently
: diagnosed with Partial 22 Trisomy, and
: I am looking for resources to expand
: my knowledge and families to share my
: experiences with.
:
: She is 11 lbs and 20.5 inches long.
: She hasn't grown much since she was 2
: months old. She is a reflux baby and
: we are getting a g tube put in and a
: fundalplacation in the next few weeks.
: She was born at 35 Weeks at about 30
: weeks gestation. She has a weird echo
: on her liver, but otherwise she is OK
: so far. The Doctors say she is unique
: and we really don't have any case
: studies to go off of yet...
:
: I hope to connect with someone who has
: experience with this.
: Sincerely,
: Jayme Southard
:
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