
Posted by Allyson Leitner
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on 3/21/2008, 10:08 pm, in reply to "ALERT: searching for Mosaic Trisomy 22 parents!!"
70.144.218.74
Hi, I have a 15 year old son that has mosaic trisomy 22. Diagnosed at birth. non verbal incontenent but very happy diagnosed in 2004 with AML(leukemia) in remission now feel free to contact me if you want.
--Previous Message--
: Hi everybody,
:
: I'm Leyla's dad (a very lively 2-year
: old girl with MT22 from Holland) and
: we joined the ief group about a month
: back. I'm trying to build a complete
: (as far as I can get) picture of all
: Mosaic
: Trisomy 22 children and their
: symptoms, for ourselves, for other
: parents of MT22 children, for
: geneticists, etc. More about
: thatlater.
:
: But I'm looking for the parents of
: several MT22 children..as listed in
: Stephanie's C22C members database, but
: whose e-mail adresses don't work
: anymore..
:
: 1) Robyn , mother of Matthew, born 76
: 2) Mari, mother of Anthony, born 90
: 3) John , father of Rebecca, born 00
: 4) Richard , father of Christian, born
: 00
: 5) Joanne , mother of ?, born 01
: 6) Brandy, mother of Jasmine, born 02
: 7) Angela, mother of Alivia, born 03
:
: Please..if you're receiving this
: e-mail, please send a reply with your
: current e-mail adress or directly to
: kooien@hetnet.nl
:
: Please..if you know any of these
: parents and their current (or recent)
: adresses ...also send me an e-mail.
:
: Thanks enormously
:
: Bas Kooi
:
:
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