[ Post a Response | Trisomy 22 and Misc. 22 Interest Board ]
Posted by Jayme Southard on 3/10/2008, 11:03 pm, in reply to "Re: 5 month old Daughter with partial 22 trisomy, looking for others with same situation"
12.17.199.1
Thanks for your response! Do you by any chance know what her exact diagnosis is (the clinical info)?
--Previous Message--
:
: My grandaughter has the same
: abnormality. She is 5 years old now.
: She was also born cleft palate. Her
: surgery to repair the cleft palate at
: age 6 months is how we found out she
: had the chromosome disorder
: --Previous Message--
: Hi there,
:
: My 5 month old daughter was recently
: diagnosed with Partial 22 Trisomy, and
: I am looking for resources to expand
: my knowledge and families to share my
: experiences with.
:
: She is 11 lbs and 20.5 inches long.
: She hasn't grown much since she was 2
: months old. She is a reflux baby and
: we are getting a g tube put in and a
: fundalplacation in the next few weeks.
: She was born at 35 Weeks at about 30
: weeks gestation. She has a weird echo
: on her liver, but otherwise she is OK
: so far. The Doctors say she is unique
: and we really don't have any case
: studies to go off of yet...
:
: I hope to connect with someone who has
: experience with this.
: Sincerely,
: Jayme Southard
:
:
:
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