[ Post a Response | Trisomy 22 and Misc. 22 Interest Board ]
Posted by marsha on 3/10/2008, 9:20 pm, in reply to "5 month old Daughter with partial 22 trisomy, looking for others with same situation"
71.2.130.50
My grandaughter has the same abnormality. She is 5 years old now. She was also born cleft palate. Her surgery to repair the cleft palate at age 6 months is how we found out she had the chromosome disorder
--Previous Message--
: Hi there,
:
: My 5 month old daughter was recently
: diagnosed with Partial 22 Trisomy, and
: I am looking for resources to expand
: my knowledge and families to share my
: experiences with.
:
: She is 11 lbs and 20.5 inches long.
: She hasn't grown much since she was 2
: months old. She is a reflux baby and
: we are getting a g tube put in and a
: fundalplacation in the next few weeks.
: She was born at 35 Weeks at about 30
: weeks gestation. She has a weird echo
: on her liver, but otherwise she is OK
: so far. The Doctors say she is unique
: and we really don't have any case
: studies to go off of yet...
:
: I hope to connect with someone who has
: experience with this.
: Sincerely,
: Jayme Southard
:
Visit our home page, http://www.nt.net/~a815/chr22.htm
