Trisomy 22 and Misc. 22 Interest Board: 5 month old Daughter with partial 22 trisomy, looking for others with same situation

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5 month old Daughter with partial 22 trisomy, looking for others with same situation

Posted by Jayme on 3/1/2008, 11:21 pm
12.17.199.1

Hi there,

My 5 month old daughter was recently diagnosed with Partial 22 Trisomy, and I am looking for resources to expand my knowledge and families to share my experiences with.

She is 11 lbs and 20.5 inches long. She hasn't grown much since she was 2 months old. She is a reflux baby and we are getting a g tube put in and a fundalplacation in the next few weeks. She was born at 35 Weeks at about 30 weeks gestation. She has a weird echo on her liver, but otherwise she is OK so far. The Doctors say she is unique and we really don't have any case studies to go off of yet...

I hope to connect with someone who has experience with this.
Sincerely,
Jayme Southard

Message Thread:

5 month old Daughter with partial 22 trisomy, looking for others with same situation - Jayme 3/1/2008, 11:21 pm
- Re: 5 month old Daughter with partial 22 trisomy, looking for others with same situation - Beth Helfrick 7/16/2008, 9:55 am
- Re: 5 month old Daughter with partial 22 trisomy, looking for others with same situation - joy 4/20/2008, 10:53 pm
- Re: 5 month old Daughter with partial 22 trisomy, looking for others with same situation - Rachel 3/14/2008, 2:21 am
- Re: 5 month old Daughter with partial 22 trisomy, looking for others with same situation - Mechille Burke 3/11/2008, 6:30 pm
- Re: 5 month old Daughter with partial 22 trisomy, looking for others with same situation - marsha 3/10/2008, 9:20 pm
  - Re: 5 month old Daughter with partial 22 trisomy, looking for others with same situation - Jayme Southard 3/10/2008, 11:03 pm
- Re: 5 month old Daughter with partial 22 trisomy, looking for others with same situation - jennifer robertson 3/2/2008, 7:42 pm
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--Previous Message-- : Hi there, : : My 5 month old daughter was recently : diagnosed with Partial 22 Trisomy, and : I am looking for resources to expand : my knowledge and families to share my : experiences with. : : She is 11 lbs and 20.5 inches long. : She hasn't grown much since she was 2 : months old. She is a reflux baby and : we are getting a g tube put in and a : fundalplacation in the next few weeks. : She was born at 35 Weeks at about 30 : weeks gestation. She has a weird echo : on her liver, but otherwise she is OK : so far. The Doctors say she is unique : and we really don't have any case : studies to go off of yet... : : I hope to connect with someone who has : experience with this. : Sincerely, : Jayme Southard :

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