[ Post a Response | Trisomy 22 and Misc. 22 Interest Board ]
Posted by JULIE on 7/9/2007, 2:14 pm, in reply to "Re: mosaic chromosome 22 questions" --Previous Message-- hello, my daughter is now 6yrs old
209.173.37.106
: Hi there, My son has Mosaic ring 22
: trisomy.
: He is almost 3. He is registered blind
: due to coloboma,still unable to walk
: or talk.
: We have had a lot of worries with his
: feeding also, he still needs
: everything real mashed up otherwise he
: just gags and brings everything up. It
: is a real battle with food and a
: constant worry. He gets a lot of ear
: infections and that puts him off food
: even more.
:
: Ali
:
: --Previous Message--
: my daughter was diagnosed with mosaic
: 22
: at birth and we are looking for any
: information any one might have. She
: has an imperoat anus and has reflux
: which has caused lots of issues with
: her feedings. she is three months old
: now. any info would help. thanks.
:
when she was still a newborn they put a mickey button in her stomache so she could eat. i don't know if your child needs this assistance but it was much easer to concetrate on other things. to the mother who's child doesn't walk, don't give up i was told noa would never walk even after a full body cast for about 5months.well today she can't run but she walks every where. she scooted for a yr first. tubes in her ears took care of repeat ear infections and she can't speak but she knows 3 or 4 different signs.it does get easer and my best advice sign up for everything offered in your area. they may not can help but will know someone who can. example it didn,t know till noa was 5 that the state would send her free diapers
:
:
Message Thread:
« Back to thread
Visit our home page, http://www.nt.net/~a815/chr22.htm