[ Post a Response | Trisomy 22 and Misc. 22 Interest Board ]
Posted by Daphne Daniels on 6/7/2007, 11:22 am, in reply to "Mosiac Trisomy22 and Downs" --Previous Message--
68.211.199.108
: Hi. My son has 22q11 deletion or VCFS
: and we have a friend who's son had a
: baby boy born with Downs Syndrome.
: He's beautiful and while looking at
: him you'd never know it they have been
: given little info as of yet EXCEPT one
: doctor referred to it at
: Mosaicsism(sp?)Downs and and I was
: wondering the likely hood if any of
: you have ever heard of the two
: happening together? I want to be of
: help since my son is 7 and we have
: rec'd all kinds of help but don't want
: to misgiude her. Thanks!! Tracy
:
Hi,
My son E.J. was born in November of 1996 with Trisomy 22 partial 11. I received little help. My son passed away in march of 2001. Although the docters out of Emory in Atlanta were helpful one on one. There seemed to be little research available on this condition. I pray that you receive more help than I did.
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