[ Post a Response | Trisomy 22 and Misc. 22 Interest Board ]
Posted by Michele --Previous Message--
on 5/29/2007, 7:22 pm, in reply to "Parenting Over the Years"
71.179.8.134
: My son is now 20 years old. As an infant
: and toddler, he presented a number of
: atypical conditions that defied
: classification for a long time.
: Ultimately he was diagnosed with
: DiGeorge Syndrome/velocardiofacial
: syndrome. In dealing with this over
: the years, one thing I've learned is
: that children with these conditions
: have a wide variety of symptoms and
: needs. Nothing seems standard - all
: are different.
:
: I just want to encourage parents to
: hang in there. Help your child get
: treatment for the problems that are
: treatable and teach them how to be the
: most they can be despite the ones that
: can't be changed.
:
: Especially in his first 5-6 years, we
: went from specialist to specialist -
: all sorts of surgeries and therapy.
: Then we got to the place we realized
: he's ours and we love him no matter
: what. Life became a lot more sane
: after that point. We still made sure
: he got all he needed but no longer
: obsessed in a search for the miracle
: "cure".
:
: Brad's a sweetheart. He graduated from
: high school with an occupational
: diploma and now works at a sheltered
: workshop. He has areas where he still
: struggles, yet also has areas where he
: amazes you with his intelligence and
: insight. Anyone who knows him will
: tell you he's a great young man.
:
: If I can help anyone struggling with
: issues of parenting their very special
: child, please contact me. I am also a
: career social worker so know the
: system from many different angles.
:
:
:
I am lost. after a cvs test, it showed my baby (at 4 months of pregnancy) had complete trisomy 22. I was told that there was no way this baby would live, and if it happened to go to term (which they said was highly unlikely), it would be stillborn. I am 44 years old. I have 3 healthy girls, but my first pregnancy at 24 yrs old was a stillborn at 28 weeks (no explaination except that she had no spleen). I couldn't deal with that again, so on the advice of doctors, I had an abortion. This is killing me My husband wants me to try again, and I am so afraid of dealing with this pain again. does this happening once mean that I cannot have another healthy child?
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