[ Post a Response | Trisomy 22 and Misc. 22 Interest Board ]
Posted by Tracy Verjinsky on 4/30/2007, 10:53 pm, in reply to "Looking for 11/22 translocation families/carriers" --Previous Message--
216.105.210.149
Just wondering what kind of study you are going to be doing? I am a carrier and may be interested in helping you out.
: Hi members:
: I am looking to connect with all
: parents of children with Emanuel
: Syndrome (trisomy 11q22q) and/or
: balanced 11/22 carriers to participate
: in a survey our group will be doing in
: the near future, in conjunction with
: the Children's Hospital of Eastern
: Ontario. If you are interested in
: further information and would be
: willing to participate, please contact
: Stephanie at steph.stpierre@gmail.com
: - I can fill you in on the details as
: they arise. It is important that we
: get as many participants as possible,
: and I hope if you are reading this you
: will consider participating.
:
: Stephanie St-Pierre
: President
: Chromosome 22 Central
: 237 Kent Avenue
: Timmins, Ontario CANADA
: P4N 3C2
: (705) 268-3099 tel/fax
: c22c@ntl.sympatico.ca
: or alt email: steph.stpierre@gmail.com
: www.c22c.org
:
: Chromosome 22 Central is a non-profit
: organization and registered Charity
: providing support & information to
: families affected by chromosome 22
: disorders. We DO NOT provide medical
: advice, and any such information sent
: out by our group should not be taken
: as such. We provide only basic
: information on various disorders and
: offer support to families by
: connecting
: them with other organizations or
: members of our group. We are not run
: by
: medical professionals, but a volunteer
: base of caring parents. Information
: contained in any electronic mailing
: should be used for informational &
: supplemental purposes only, and may be
: confidential in nature. Please always
: contact your personal healthcare
: provider if you have questions or
: concerns.
: If you have received this e-mail in
: error, it is prohibited to be
: forwarded,
: distributed or printed. If you have
: received this in error, please contact
: the sender, and delete the
: information.
:
:
Message Thread:
« Back to thread
Visit our home page, http://www.nt.net/~a815/chr22.htm