[ Post a Response | Trisomy 22 and Misc. 22 Interest Board ]
Posted by Stephanie St-Pierre on 3/2/2007, 7:13 pm I am looking to connect with all parents of children with Emanuel Syndrome (trisomy 11q22q) and/or balanced 11/22 carriers to participate in a survey our group will be doing in the near future, in conjunction with the Children's Hospital of Eastern Ontario. If you are interested in further information and would be willing to participate, please contact Stephanie at steph.stpierre@gmail.com - I can fill you in on the details as they arise. It is important that we get as many participants as possible, and I hope if you are reading this you will consider participating. Stephanie St-Pierre Chromosome 22 Central is a non-profit organization and registered Charity
208.101.70.217
Hi members:
President
Chromosome 22 Central
237 Kent Avenue
Timmins, Ontario CANADA
P4N 3C2
(705) 268-3099 tel/fax
c22c@ntl.sympatico.ca
or alt email: steph.stpierre@gmail.com
www.c22c.org
providing support & information to families affected by chromosome 22
disorders. We DO NOT provide medical advice, and any such information sent
out by our group should not be taken as such. We provide only basic
information on various disorders and offer support to families by connecting
them with other organizations or members of our group. We are not run by
medical professionals, but a volunteer base of caring parents. Information
contained in any electronic mailing should be used for informational &
supplemental purposes only, and may be confidential in nature. Please always
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